Our Hospice nurses and doctor in Gomel support over 30 families whose children have genetic disorders or life limiting illnesses.
Many of the children need special equipment to enable them to live at home with their families. The Health Department now supply a ventilator if this is needed.
But there are other items which are not supplied and many families cannot afford to buy them. The mother is unable to work as she is looking after the child all the time and in many cases there is no father in the home.
£100 would buy a new gastrostomy set for a child who is struggling to be fed by mouth
£15 would buy a replacement tube for a gastrostomy
£25 would buy a pulse oximeter
£350 would buy an Oxygenator. There are a small number of children who cannot leave hospital without this.